Cautionary Tale

13 Feb

on October 26, 2014, my life changed in a way I truly never thought it would, I knew it COULD but like so many other carefree 44-year olds, I thought I was immortal.  I knew that I had health risks that made me more susceptible to having a stroke than most  other people and I also knew that I didn’t take care of myself the way I should have but this is all said in hindsight while I type with one hand because my left hand has not fully regained movement, especially fine motor skills. I had an Ischemic stroke which occurs as a result of an obstruction within a blood vessel supplying blood to the brain. It accounts for 87 percent of all stroke cases.It affected the right side of my brain therefore the left side of my body, that’s the way it works, the side of your brain affected is opposite the side of your body affected. I never lost the ability to speak, and was walking within days in the ICU. my arm mobility was good as far as being able to move it up and down but my hand didn’t come back until December or so. The cause of my stroke was largely due to just not taking care of myself, I have to take medicine called Warfarin also known as Coumadin because I have a titanium heart valve and atrial fibrillation. because of this medication, I need to have regular blood tests to monitor the INR level in my blood. Coumadin is a very finicky drug and its affects can be lessened or heightened by the amount of Vitamin K ingested. Blood tests are required to determine if the correct INR level is being reached or if your diet and/or dosage of Coumadin should be adjusted. I stopped monitoring my Coumadin because it was nearly impossible to work full time, be a divorced mom and get blood tests regularly. 

Prothrombin time is measured in seconds. Most of the time, results are given as what is called INR (or international normalized ratio). If you are taking warfarin to prevent blood clots, your doctor will most likely choose to keep your INR between 2.0 and 3.0.

The night of my stroke was the Sunday before my very favorite holiday, Halloween. I felt totally normal, maybe a little spacey, maybe I was drooling a little bit, but I was able to walk around and sort of talk, my 13-year old was worried and called 911. luckily. He recognized the signs of stroke from a commercial.

STROKE

Suddenly 5 EMTs were in my house to take me to the ER, I was covered in glitter because I had been working on my sweet sweet mermaid costume for Halloween. I would have loved to see video of myself drooling, black t-shirt tied around wet hair. like a turban because I had just gotten out of the shower and I read that a shirt was better for your hair than a towel to dry it. I must have looked and seemed literally crazy because the EMTs asked me if I had anti-psych meds and asked my kids if I was always like this – um, nope only when  having a stroke. I got to the ER and went through all the tests there to confirm that I was having a stroke and they determined what kind  and gave me a drug they told me would break up the clot. so I spent a week in the hospital and then went on to spend 2 weeks in an inpatient rehab where I had extensive therapies, physical, occupational and speech.

I’ve been told I’m an inspiration, I have a joke in my set that starts, “being a divorced 40- something single mom  living in a college town, I have often thought of writing my memoirs titled “Cautionary Tale”, if I’m an inspiration at all be inspired to take care of yourself so you don’t end up having to be inspirational and you can just live your damn life as healthily and as  long as possible, I feel like a fraud because often the past several months all I’ve wanted to do is lie in bed and eat Ben & Jerry’s ice cream but it wasn’t an option, my mom, sister and 200 other people including my two kids would never have let that go down.Be inspired by selfless people who do for others.

I have made enough mistakes to last a lifetime but I won’t beat myself up over this most recent one, anymore. I have learned from it and I am 22 lbs lighter since leaving rehab where I inexplicably managed to gain 4 lbs, while barely eating and exercising regularly.

My life will definitely be different from now on but different doesn’t automatically = terrible. I’m pretty excited about the changes, even though stroke is the number 1 cause of acquired disability in the country, I am not fully disabled, I am left with the deficits in my left hand and some cognitive issues, though when I told a close male friend that I am now extremely forgetful, cannot multi-task, and don’t have an attention to detail he told me he’s been like that his whole life, so yet another way I am stereo-typically male. I cannot return to work full-time but will be returning to work with children, on a part-time basis,  which is truly what made me the happiest in my professional life. I am taking the state mandated training online so when I am ready to find a job I shouldn’t have any problem. Its hard for me to buckle my belt which has become necessary because of the weight loss, so between my pants not staying up and the brain damage, I could have a new career in politics. I am seriously looking into designing an app for me and the other 3 million people on Coumadin, that tracks and logs vitamin K intake. My life is far from over so be inspired by that not my recovery because that was mostly luck and stubborness.

I haqve been writing and performing stand-up comedy for about a year, I have written material from this experience that I hope is funny,(some of which is in this post) I have no affect in my voice (meaning I sound pretty robotic) and my timing is terrible but my number one goal is  to get back up on stage.

Tomorrow is valentines day and I am valentine-less again this year but I have 3 gorgeous rented dresses hanging in my closet and tomorrow I will choose one and put it on and go to a fancy event called the Heart Ball where I am volunteering for the American Stroke Association and the past several months have shown me that I am absolutely surrounded by love every day of the year.

valentines day

6 Responses to “Cautionary Tale”

  1. Cullen February 13, 2015 at 7:19 pm #

    Amy, you are an inspiration.

    • Amy February 13, 2015 at 8:08 pm #

      oh Cullen, good, be inspired to takre care of yourself and not be a dumbass 🙂 Ive missed you hope you’ve been doing well.

  2. jazzcookie February 13, 2015 at 7:39 pm #

    Amy, I am so happy to see you back again, and I loved reading your amazing story. Didn’t you once say, “fight like hell, baby girl.” Well, you’ve obviously done that and even though we’ve never met, I am so proud of you! I’m part of a friends team working with one who has had three strokes and I know a little about it now. You are always an inspiration, cupcake, but now even more so. Happy, happy Valentine’s Day. You’re gonna kill whichever one of those beautiful dresses you choose! Will be thinking about you tomorrow night. You are indeed surrounded by love including your son who called 911. Great kid. Great mom. We all HEART you, Amy!

    • Amy February 13, 2015 at 8:10 pm #

      Molly! what a sweet comment, I heart you lots, hope you’ve been doing well!!

  3. Alyson Chadwick February 14, 2015 at 11:28 am #

    This was NOT caused by your “stupidity.” You have no idea of anything would have prevented this and even if you had done everything perfectly, it could have happened. I am super anemic and not supposed to be vegetarian but I often am. I was seeing a doctor for this and getting iron infusions yet fainted on my way home from dinner one night and my heart stopped (they used the electrical stimulation to start it but I was clinically dead for a period of time).

    You were an inspiration to me *before* this and just more so now. You totally rock.

    • Amy February 14, 2015 at 11:30 am #

      That is what one of the doctors in rehab said but monitoring my coumadin certainly is a good way to lessen the chances. Thank you Alyson ❤️

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